When the World Can’t See You… Surviving the Isolation, Silence, and Dismissal of Chronic Illness

This book is for all of you who suffer from Long COVID, POTS, Dysautonomia, and other isolating, half-lived conditions. For those who wake each day inside a body that feels foreign, heavy, or unreliable.

For those who have felt unseen, unheard, or dismissed. Isolated and alone.

When you are ready to step into a world that understands, that witnesses, that validates, and reaches toward you…. this book is my hand extended to hold yours. To remind you that you are not alone.

It is also for the friends, family, and loved ones who ache to understand. I know it can feel overwhelming to watch someone you love suffer, especially when words fall short or the path forward feels unclear.

Too often, people step back, not out of indifference, but out of not knowing what to say or how to help. This book offers guidance for you, too. It is filled with ideas, words, and resources that can help you stand alongside the person you love, without needing to fix or fully understand their experience. Your presence, your compassion, your willingness to listen and believe…. these are lifelines.

To the sensitive souls and to those who love them: you are not walking this path alone.